Meet Sunny.
Sunny is pretty lucky. She lives a fairly normal life with NF. She has a bachelors and a masters. She doesn’t have too many noticeable fibromas, tumors or deformities.
So when she found out that her unborn son had NF, she prayed he was going to have the same experience. Unfortunately, that was not the case. When Noah was 11 months old, Sunny and her husband noticed that one leg was slightly longer than the other. This was the start of numerous doctors’ visits just to figure out what was going on.
Now, at the age of four, Noah’s childhood is marked by surgeries, medical appointments, and countless hours spent traveling to specialists. While his best friends run around, Noah is learning the ropes of medical procedures and enduring lengthy waits in doctor offices.
It’s not all bad; Noah gets a new toy for every doctor’s appointment and surgery. He even has a trick. He learned that he can stand on his longer leg to bypass some of the height restricted rides at Disneyland.