Who We Are

We are individuals and families whose lives have been impacted by Neurofibromatosis. We have come together out of our personal need for information and support. Neurofibromatosis Inc. California is a non profit organization founded in February 2004, providing medical symposiums, educational meetings, family support groups as well as many other key needs for California’s medical and healthcare professionals, NF patients and their families. Meetings are held throughout California. Our focus is also to be involved in advocacy groups and provide support for NF research.

We exist to support, educate and advocate.  The NF diagnosis brings so many questions.  Our Goal is to Educate, Uplift and Advocate.  

Our Mission

Create a community of support for individuals affected by Neurofibromatosis and their families, through education, patient advocacy, coalitions, raising public awareness, and supporting research and treatments for a cure.

Board of Directors

Debbie Bell

Executive Director / Director for Northern California

Maria Powell

President / Director for Central California

Katie Sperring

Secretary / Director for Southern California

Becky Rowe


Sunny Porter

Vice President

Contact Information

Mail Address

Neurofibromatosis, Inc. California (NFC)
P.O. Box 1234
Vacaville, CA 95696

Phone and Fax

Office phone: 707-469-0467
Fax number: 866-571-2366

Tax Identification Number

TIN:  68-0582616

Online Contact Form

Supporting Adults and Children with Neurofibromatosis. Please give us some time to return phone calls or emails. We are a 100% volunteer organization.

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