NF California

We exist to educate, support & advocate.

NF California’s goal is to create a community of support for individuals and families affected by Neurofibromatosis through education, patient advocacy, coalitions, raising public awareness, and supporting research and treatments for a cure.

About Us

Find out about our organization, mission, our methods, and the results of our of advocacy.

Take Action

Your action allows us to help families, raise awareness by making a donation today.

Donate Today

Finish Strong

As we approach the end of the year, many of us are reflecting on the importance of giving to the causes that resonate deeply within our hearts.

Life of NF

In honor of May being Neurofibromatosis Awareness Month, we asked our NF friends and families to share their experiences with NF. We asked them to answer the question “What is it like to live with NF?”

Rockin’ Hops

Come celebrate NF Awareness Month at our 3rd Annual Rockin’ Hops Music Festival. We will have live bands, food trucks, silent auction, raffle ~ Join us for a family friendly event in Vacaville on May 17th and 18th.

Upcoming Events

Tamale Making Party and Boutique ~ Huntington Beach

December 14, 2024

Please join us in Huntington Beach for a tamale making party designed to make and take your own tamales.

Rising Adults (RAD)

January 15, 2025

Rising Adults (RAD) is a community for special young adults aged 18-26 who are navigating the exciting and challenging journey of adulthood.

Rising Adults (RAD)

January 29, 2025

Rising Adults (RAD) is a community for special young adults aged 18-26 who are navigating the exciting and challenging journey of adulthood.

Year-End Giving

January 31, 2025

As we approach the end of the year, many of us are reflecting on the importance of giving to the causes that resonate deeply within our hearts. This is a time of generosity and hope, and we invite you to join us.

Stanford Ask theDoctors Meeting

March 8, 2025

Organized by Stanford University, the Children’s Tumor Foundation, and NF California, this event provides a comprehensive platform for discussing and addressing the various concerns

Rockin’ Hops Music Festival

May 17, 2025

Lots of great bands, raffle and silents auction items. 9 bands lined up over 18 hours of music.

Volunteers Need

June 30, 2025

In 2024, we proudly celebrated our 20-year anniversary, a testament to the unwavering dedication of our board members and volunteers— who have passionately volunteered for NF California. Come be a part of something transformative!

Got Sneakers – All Year Long Fundraiser

June 30, 2025

The “GotSneakers” fundraiser will last all year, and we would love for you to get involved. The program helps to reuse and recycle sneakers, in addition to raising awareness for Neurofibromatosis.

Huntington Beach Day

July 12, 2025

Join us for a relaxing family style picnic day at Bolsa Chica State Beach! Don’t forget your towel, beach chair, sunglasses and sunscreen!

Cornhole for NF

September 28, 2025

Join us at Solano Brewing Co for some Cornhole fun!