I am Mateo. I am 14. My mom has known I had NF since I was three and I remember going to different doctors all my life but I didn’t know about NF until a couple of years ago. 

The hardest thing about having NF is not really knowing what all it is or exactly how it affects me. Everyone’s affected chromosomes are different and there just isn’t the research.

I do know I have a hard time remembering things or people.  I had to get shots when I was 11 to stop me from growing so fast too early.  Other than those I’ve been told I’m not where I should be socially.

Hopefully there’ll be a cure for NF soon!