Carter says “If someone asks me what it’s like to have NF, I would say that it sucks because whenever I have to get surgery, I’m out of work.
And then it feels like I’m starting over from square one each time.
I have had surgery 14 times in my life. Can you imagine starting over that many times?
The only positive thing about getting surgery is the ability to donate tumor tissues for NF research. I like doing this because I want it to be used for research to hopefully find a cure.