Amarachi was diagnosed with NF1 in 2019, we had no idea what NF1 was until after my research; we had to leave Abuja Nigeria to the US for treatment.

The initial treatment didn’t yield much result, so we switched to another medication that is now promising. She has been able to go back to school and maintain a normal life. Amarachi is 6 years old now and getting stronger each day. We hope the medication will do more than shrink the tumors, we need them to be gone forever.

Furthermore, Amarachi has been on a certain mek inhibitor for 1 year plus, we are hopeful we will get her whole as the time progresses and maybe a medicine to cure the illness. 

I believe there is nothing God cannot do, so we remain prayerful.