NF Research

Researchers are hard at work trying to understand NF more fully and to find treatments to improve the lives of those with NF. Their studies frequently require participation from affected individuals. “Trials” are opportunities for the NF community to assist in these research projects. All research benefits the NF community as a whole; in the case of drugs being tested, there is also the hope and possibility that the NF participant may personally benefit. Drug trials are normally limited to individuals with specific (and usually severe) symptoms.